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Area mother pushing survival length of son diagnosed with Duchenne

By: WJAC Web Staff

MEYERSDALE, Pa. -- One mother whose son is suffering from Duchenne muscular dystrophy (DMD) is asking the public to help her send a message that will give her child a chance of survival.

Jackson Kelly is an active child, enjoys playing outside and always seems to have a smile on his face. But what you cannot see is he's suffering from a rare disease.

"It affects one in 2,500 boys," said Jackson's mother Wendy Kelly.

According to the Centers for Disease Control and Prevention, a person with DMD will eventually lose the ability to walk. This disease also has a 100 percent fatality rate and there is no cure.

Wendy is pushing for a drug that has been found to slow down the effects of DMD and turn it into a Becker's disease.

"That means their symptoms are lighter," said Wendy. "They can walk a lot longer, live a lot longer."

All the drug needs is the approval through the Food and Drug Administration.

"There's no side effects the drug is working," Wendy said.

To help move things along Wendy is encouraging everyone to sign a petition that she hopes will make it to President Barack Obama's desk.

"I want Obama to read it and see my son's picture and know this drug is going to go to him and help live his life by decades," Wendy said.

Jackson's family needs 100,000 signatures by March 29.

Click this link to see the petition.

 
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Edgar Snyder

Washington Times

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